Chiari

I have written often about my dearest childhood friend, Monica. We met 30 years ago, and without her, I don’t know how I would have gotten through a lot of my life. In her blog Monica recently wrote this:

Oswald Chambers wrote, “Living a life of faith means never knowing where you are being led. But it does mean loving and knowing the One who is leading. It is literally a life of faith, not of understanding and reason — a life of knowing him who calls us to go.” Knowing a God who is unchanging and will do everything He says He will do is the only way I will navigate through the next weeks and months. I believe.

One of these days I’m going to have Monica share her story with you… it’s a story of life… a life she almost lost during her pregnancy with her youngest daughter. Her daughter almost lost her life, too.

Now that youngest daughter is 2 years old.

Danica. Sweet, precious, two-year-old Danica.

Danica is having brain surgery on Friday.

This sweet, precious, two-year-old. She has a chiari malformation.

What this means in simple terms is she has a gap where most people’s skulls are closed and so some of her brain is sticking out into her spinal column. Some people have this condition without symptoms, but in Danica’s case she is presenting many of the most severe symptoms very early on.

This is not a post about me, but can I just tell y’all how much it is KILLING me that I live 7 hours away from Monica and can’t be with her even just to sit with her while she keeps vigil for the next week in the ICU?

God knew what He was doing when He formed this sweet one in Monica’s womb. I often picture God’s smile as he formed little Danica. I picture His tears as He feels their pain in this fallen world. And I picture that one day when they will BOTH be pain free forever.

Please, friends, will you pray with me for my friend and for baby Danica? Will you pray for Dan & Monica as parents who must watch their child suffer? Will you pray for Delaney, her sister, who isn’t allowed in the ICU, will stay with grandparents and be away from her parents during this fearful time? Will you pray for the rest of their family, near and far?

And will you pray for faith to believe truth when life seems so brutal?

I know how much it would mean to me… and it would mean even more to my friend.

Thank you.

9 responses to “Chiari”

  1. Oh lady, my heart is hurting for your friend (and for you being so far away)

    I’ll pray for this family.

    Asher has a chiari malfunction too. I don’t mention it much because it was most likely taken care of when they put his shunt in (the doc felt that once the pressure was relieved from the fluid, things would work themselves back into place, in short) I also don’t talk about it because I do have fears that it won’t get better over time while I have peace that even if they have to fix it surgically, he’s going to be alright. I guess what I’m saying is I just can’t think about that.

    So to your lovely friend, from another brain baby Mama, my thoughts and prayers are with you.

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  2. I will absolutely be praying!!! Please keep up posted. Sending much love…

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  3. joining in prayer with heavy hearts! oh, how our Lord cares…

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  4. Without a doubt, praying for Monica and her family. For the doctors. and for you.

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  5. I’ve been through this morning without crying and of course you, sweet one, make me feel finally what is behind this crazy dam I have been building in my heart. Thank you for always holding me up when I am too weak. I love you.

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  6. she will be fine . she is so young and will bounce back soon. Prayers with yall today

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  7. Remembering Danica this morning….such a beautiful name! In honor of her Daddy I’m guessing. You are such a prayer warrior Angie~and thank you for inviting us to join you on this one. Monica is one blessed lady to have you as her dearest friend!

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  8. Oh you know I will be praying! I went over to her blog and left her a note as well. May the God of all peace flood over each one so personally involved in this situation today!

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  9. Melissa Bruining Teeter Avatar
    Melissa Bruining Teeter

    I will pray!!!!!

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