• A Soul-Tearing Load

    “…two “old souls” met in early childhood, and the friendship was instantaneous. Monica has taught me much about finding beauty in the every day since then. Whether it was playing orphans in my backyard lying beneath the Dogwood tree, or traipsing through the golf course behind her house. Whether it was writing poetry and mailing it to each other for critiques or heading off to watch baseball games together. Whether it was crying or laughing or imagining or writing or fighting, we were always there, kindred spirits.”

    I’ve written about her before… my Monica… my friend of over 30 years. And I’ve wanted to write again for days now. But no words will come. Grief and pain have stolen my words (and hers) again.

    Many of you have been faithful to pray for Monica’s family as their sweet girl, Danica, has walked a road that is almost impossible to fathom, especially for a young child. And they have walked this road with her, bearing the emotional wounds that suffering brings. I would be remiss if I didn’t tell you how well Danica has been doing… that her collar is off and her fusion is beautiful and, y’all, her little white neck stretching toward the heavens is beyond lovely. Thank you for praying for them…

    I had hoped this was over for them. That they would have time to breathe, to gain strength, to walk upright for a while rather than bowed beneath a load that is back-breaking and soul-tearing.

    But it is not.

    And I heave deep sighs. And I sob on the phone with my friend. And I lie awake in the nights and I weep softly so I won’t wake my family and I beg God for miracles for them. And I walk each moment ever mindful of her presence and her pain.

    And I ask you to please, please pray for Monica and her family once again.

    You see, Monica has suffered with fibromyalgia… a debilitating connective tissue disorder for years. Only they recently discovered it’s the wrong diagnosis, and I can’t even describe what the diagnosis is because I am still wrapping my mind around it all myself. You can read her descriptions here.

    I say a lot of “I don’t know” these days when I think of her. I pray a lot of “I don’t know” these days, too.

    I don’t know how a family can bear so much.
    I don’t know how I can be apart from her anymore in this.
    I don’t know what God has planned for them.
    I don’t know how her body can suffer any more pain.
    I don’t know where the money will come from to pay for it all.

    I don’t know…

    I don’t know…

    But what I do know is that in one week my friend will undergo a very similar surgery to what Danica had: a suboccipital brain decompression, reduction of basilar invagination and cranio cervical fusion. In less than two weeks they will do surgery on her brain and fuse her neck.

    And those less than two weeks means she will miss Thanksgiving with her girls. They will be separated again. Delaney has suffered separation too many times and she is hurting. Danica clings to her mother, just the natural outcome of Monica being her caregiver on so many levels, but she will lose that security for a while. Dan will sit in the hospital beside his wife and watch her suffer unthinkable pain. The bills will pile up on top of the already unpaid bills and they will wonder how they will pay for it all.

    Then there will be months of recovery… for all of them, and the emotional and spiritual recovery will be far longer than the physical.

    I ache to be with her… to curl up with her and read to her and rub her aching limbs and pray with her and sit in silence with her and just be.

    In our last phone conversation, she sobbed to me, “Ang, I have nothing left. Nothing left.” I know that feeling. I understood her completely. Taking a deep breath, she added, “But He has led us here… and He will provide.”

    Ruthless trust.

    I know that feeling, too. I understand that faith completely.

    And I know that she has taught me what that looks like.

    We’ve taught each other.

    After all, that’s what friends do.

    Monica once said to me before Danica’s surgery, “We all pray somewhere… On our beds, our couches, our office chairs, at our kitchen counters.” Her voice choked, “I’m just asking people to go a little lower for Danica on Tuesday. I’m just asking people to get on their knees.”

    Now it is my turn… we all pray somewhere, on our beds, our couches, our office chairs, at our kitchen counters… will you just go a little lower for my friends? Will you get on your knees for Monica and Dan, Delaney and Danica?

    (I would encourage you to follow Monica’s story at her blog if you wish… She explains far better than I what they are enduring.)

  • November Gratitude: Protection

    The children love to climb the ladder to our attic and explore. I needed a few things so I asked for their help, happy to incude them in our daily tasks. The boys were up top grabbing the items we needed and handing them down to me. Bella-girl stood on the ladder with me behind her holding her so she wouldn’t fall. She began climbing down, and one of the boys began moving things back into place, finishing their job and not seeing what was coming…

    “Don’t! Don’t! Don’t!” I heard the other boy shouting, insistently, almost fearfully.

    It was too late.

    Looking up, I saw it rolling. A barbell with weights on it. At least 20 pounds of metal and bolts and pain falling towards us, right on top of her.

    Then I heard her screams as I pinned the weight beside me with my bad arm (I don’t know how) to the back of the ladder.

    The boys’ faces, white, peered from the attic hole and Bella’s wails of “Oh, it burns! It BURNS!” pierced. I grabbed her with my left arm, the weight with my right, and climbed down the ladder, trying to soothe her screams.

    “Is there blood?” she asked through sobs. I was terrified to see what had happened.

    I looked.

    No.

    In fact.

    There was nothing.

    From a human standpoint, I have no idea how she was uninjured.

    The weight must have only grazed her lip.

    I don’t know how.

    But I do know how.

    It was God’s protection over my child.

    And it was protection over the heart of a little boy who didn’t see the weight he accidentally knocked out… over the heart of another boy who saw it coming but couldn’t stop it… over the heart and body of a little girl who could have been horribly injured.

    “Mommy! Mommy! Mommy!” she kept saying it over and over, like a mantra. She just needed me close. Then she finally said, “If you hadn’t been there…”

    “But I was, dear girl. I was.”

    The illusion of control, as my sweet friend, Beth, says…

    I like to think I have it.

    I don’t. And it’s moments like these in our ordinary days that remind me I am not in control of anything.

    But He is.

    And He spared my girl today. He spared all of us.

    It’s the daily reminder I need. That He is in control. He is guarding and protecting us.

    Honestly, I shook for at least an hour after this happened. I hyper-ventilated in the bathroom and called Brian to talk me down from a panic attack.

    What might have been attacks me and plagues me still…

    As I look back over my life, there is so much pain, so many falls, and I find myself crying, “Jesus! Jesus! Jesus!” like a mantra. I need Him close, “If YOU hadn’t been there…”

    I hear His whispered reply…

    “But, I am, dear girl. I am.”

  • November Gratitude: Merry Folk in Masquerade

    A gypsy fire is on the hearth,
    Sign of the carnival of mirth;
    Through the dun fields and from the glade
    Flash merry folk in masquerade,
    For this is Hallowe’en!
    ~Author Unknown

    As you can imagine, there aren’t many places to go in our little country community for trick-or-treating fun, so we loaded up the kids and spent the evening with friends at their home downtown.

    There they were, 4 boys of approximate age and 2 girls of approximate age walking down streets with their dads. She was inside carving a pumpkin and preparing chili for when they returned, and I got to sit outside on their porch and watch the festivities, passing out candy and guessing what costumes the children were wearing.

    It was a taste of small town America, the gorgeous homes and scores of children waving at friends and crunching through the leaves to shout “trick or treat!” Almost every house was bright with yellow glows, windows flaming, welcoming neighbors and guests. I was amazed that there was so much light!

    When the children returned with their haul of candy and red noses from the October chill, we warmed them with food and listened as they chattered, and we shared our lives with friends.

    As I sat there I couldn’t help but think that this is why we do Halloween. Not because we are cavalier about its history of darkness. Not because we are celebrating evil or spirits or trying to ward off the devil.

    No, we do Halloween because for us it’s about friendship and community and warmth and fun and merriment… It’s taking the darkness and making it light… It’s taking the sad, as Tim Keller says, and making it untrue.

    It’s remembering that every soul on that sidewalk is someone to love.

    It’s about grace and good gifts…

    And it was a night overflowing with countless beauty.

  • Magic to Believe In

    “Magic has to be believed in. It’s the only way it’s real”
    (A Little Princess)

    p1090719.jpg

    Her footfalls were soft down the stairs this morning, muffled by her sleeper jammy feet. She peeked into the den where I sat under a warm blanket in the quietness of our dark house.

    “Mommy?” she whispered, curling up next to me and looking deep into my eyes, “Did you see the snow?” I nodded, gazing at her barely contained excitement. “I did.”

    Her eyes sparkled (don’t they always?), “Iiiiiii LOVE it!” she threw her arms up, jumped off the couch and proceeded to twirl through the room.

    p1090721.jpg

    She has a magic all her own, and I believe in it.

    Later that morning, after Daddy and the boys had gone to a service day at church, we donned our hats and gloves and took a walk in the snow. She spun and danced and drew pictures with her feet. Then we came inside to a glowing fire, hot chocolate and The Little Princess on tv.

    p1090736.jpg

    It was magical. A magic I can believe in.

    She creates it. Like artwork with footprints.

    Only she creates artwork with her spirit every day.

    p1090727.jpg
  • Forgetting… But Remembering

    The sky was beautiful this morning… a blanket of white clouds over colored mountains with golden rays peeping through every now and then. It was a breathtaking drive to school and the children and I “oohed” and “ahhed” the entire way. Well, maybe not the entire way, because we were running late and every now and then we’d stop to fret about the lights being red or the guy driving 15 mph below the speed limit. But most of the way we were spellbound by the beauty around us.

    I kept reminding my Ash when he’d fuss about the time that God was in control of those traffic lights and He knew we’d get behind slow vehicles, and it was all going to be okay. Perhaps He was protecting us from a car accident by allowing us to run late.

    I think I was preaching to myself more than to my son though. I was flustered and frustrated because we were late, yes, but more because we were late because I forgot that I. was. supposed. to. drive. them. today.

    Bri usually takes the kids to school, but he had an early meeting this morning so I was the driver. Only at 7:45 I was still sitting in my jammies and snuggling my Bella-girl waiting for Bri to come downstairs and wondering what was taking him so long. Then it hit me.

    I forgot.

    We ran around like crazy fools… well, I was the only one running (and I think I pulled a hamstring taking the stairs three at a time). And Bear is home sick again today, so he just wrapped up in a blanket and curled up in our van and was brave and strong even though it was freezing cold and his head and throat hurt so badly.

    We knew we’d be late.

    I knew it was going to be fine.

    It wasn’t so much that we were late (although I LOATHE being late for anything important), it was why we were late that bothered me.

    Because. I. forgot.

    How could I forget when Bri had just told me less than 12 hours before?

    Honestly, y’all, I know you can say to me, “We all have days like this.” or “It’s just part of being human.” or “It’s ok.”

    And yes, I agree, especially with the whole being human part, because I need to let myself be human and not think I’m superwoman. But the frustrating part for me is that this is part of the new normal for us.

    Me not remembering things.

    I’ve struggled with chemo brain for over 3 years now, and I know it’s part of this whole cancer battle. I know it can last for 10 years or more. So I can tell myself all that, but the problem is it’s been exacerbated by this last surgery. It’s like my brain relapsed and hasn’t recovered yet.

    So I battle it. Every day.

    Brian sometimes looks at me like I’ve grown four heads and says, “Um, we just talked about that 5 minutes ago.” And I get sad and frustrated and discouraged, and I struggle to accept it as part of my life.

    But then I look around. Deep breaths.

    And I remember…

    I remember how beautiful the clouds were this morning and how Asher prayed for our day and our friends who are hurting while I drove. I remember how Brian’s kiss good night last night felt and how Bella’s arms wrapped around me warmed my heart this morning. I remember the gentle words of my sick Bear, “Mommy, I like spending quiet mornings with you.”

    And I remember the truth I read this morning, that “It is God who arms me with strength and keeps my way secure. He makes my feet like the feet of a deer; he causes me to stand on the heights. He trains my hands for battle; my arms can bend a bow of bronze.” And I remember that God gives me strength to face the challenges of each day… that is His promise. He doesn’t promise to eliminate the challenges, but He is with me in them.

    Yes, I remember.

    I remember the important things.

    Thank you, Lord, for late mornings and for beautiful skies and for warm hearts and warm hugs. Thank you for snuggly boys and sweet words, for my hubby’s job and early meetings and Your provision. And thank you that I can never forget your goodness, because it surrounds us every moment.

  • Where ARE You?

    Yes, I know my posts have been few and far between since my last cancer diagnosis, surgery and recovery. Lots of you have asked me where I am, how I am, am I okay?

    I’m never quite sure how to answer those questions.

    Yes. I am okay.

    Why am I not writing?

    Honestly, the energy I need to care for my family and my home is draining. My first things come first, and sadly, writing has been pushed to the back burner.

    I miss it. I really do.

    I struggle so much with all that has been stolen from me by the ugliness of cancer, and it seems my words have been stolen as well. I haven’t journaled in ages either, because when I sit, I sleep. I know that needs to happen. I know that is how my body heals. But writing is a way my heart heals, and I am missing that part of my recovery.

    We are figuring out what this new normal looks like and the children pray every morning for Mommy to get her strength back. It’s returning, but it is a slow return. I am learning how to spend my energy and schedule my time so that I can refuel. Really it’s like a bank. I can make withdrawals (and I do), but I must make deposits, too. My heart struggles… it struggles with the pain of so much suffering and it is tired, too. It needs the deposits, too. So I spend my mornings digging my wells deep into the Word, so I can find refreshment in days to come. Because we know that we can’t ever assume there aren’t hard days to come.

    In a nutshell recovery has been hard.

    But.

    It is good.

    We are enjoying being a family. We are choosing joy in the moments and have relished being together. The boys have finished playing football and they are busy with play-dates and school and birthday parties and piano lessons and learning and fun. We’ve had a family stay-cation plus a weekend for just my Brian and me where we double-dated with good friends and laughed and played and talked.

    My Bear loves to join me in the kitchen and cook supper and dance. My Ash loves to curl up with good books and read with me. And Bella-girl spends her afternoons helping me around the house and running errands and just generally bringing sunshine into our home. Brian’s work load has significantly increased, but he is faithful to make time for us in the evenings and we’ve had some quiet mornings together before work, too.

    So we are good.

    It is hard.

    But we are good.

    We are together.

    And that…

    Is good.

    (I long for more words to come… I am processing a very long visit yesterday with the doctor to discuss genetics and where we go from here with testing and possibilities. I will hopefully update y’all soon. Thank you for caring…)

  • Warmth

    Warmth

    This morning begins as most mornings do.

    My alarm wakes me in the darkness and I gently shake each child awake to dress while I make breakfast. Then we sit together, my children and I, and we read our Bible, and we praise God for who He is, and we list the blessings for which we are thankful.

    Warmth,” he chooses for his blessing, his eyes lighting on the heater in our dining room bringing the chilly air to a tolerable temperature.

    Warmth.

    It is such a blessing, but something I so often take for granted.

    Warmth.

    A gentle reminder from my son that all things are blessings. That God gives us light and dark, warmth and cold. That it is all from His hand and I have no place to complain.

    Warmth.

    Warmth surrounds me.

    I groan at the thought of leaving the arms of my Brian and the warmth of my heavy comforter when the alarm rings, but I inhale the sweet aroma of crockpot applesauce having cooked all night and filling my kitchen with it’s comforting smell. I slip on my fuzzy slippers and pull on my robe over fleece jammies. The steam from my coffee heats my face as I take my first sip, and I close my eyes and soak it in. Turning on the stovetop burner, I fill a pot with oatmeal and raisins and spices and watch as it boils and steams.

    Warmth.

    The children arrive in their school uniforms with sweaters and tights, and we take our places at the table with the heater pouring it’s warmth into the room and we share and sing and pray and learn and we fill ourselves with Him.

    Warmth.

    Brian heats up the car as they pile on fleeces and head off to school, and I tiptoe onto the front porch wrapped in a blanket with my breath steaming the air. “I love you!” they yell and sign and I watch their little hands waving out the car window until I can’t see them anymore.

    Warmth.

    I head upstairs to pull warm clothes from the dryer and fold them. After a hot shower, I reheat my remaining coffee and sit with words that are true.

    Warmth.

    My mom arrives and I feel the warmth of her love as we hug and then fold more clothes together and the warmth of our breath fills the air as we share our hearts. We stir and mix and measure and taste as we bake granola and fresh bread and salsa together, and the kitchen warms from the oven and the sun peeking through the windows. Then the pitter of little feet and the creak of the front door tells me my Bella girl has arrived home, and she runs to fill our arms with hugs and our home with the glow of her sunshine.

    Warmth.

    It is noon, and I am warmed… and there is so much day ahead. There is shopping together and greeting friends in the store with warm hugs, the warm breeze through our sunroof, the chatter of children filling the van as I drive carpool and arrive home to steam from a dishwasher finishing its last cycle and the aroma of baked bread. Curling under a blanket, I nap for a bit and then bake meatballs and homemade sauce and boil pasta on the stove and we fill our bellies with food, and I pick up another book, and we warm to the excitement of adventure and read about hot tempers and going to God for grace and strength.

    Warmth.

    There is the warm water rinsing dishes and warm arms wrapped around my waist and whispered, “Hello, beautiful“. There is curling up on the couch to spend an evening together as a family, the five of us, then warm baths and hugs good night.

    Then there is the singing and the praying and ending our day as we began it.

    Warmth.

    And I am reminded as I hear the chorus of “good night and I love you” that thanking God isn’t about what I feel like, it’s about choosing to see.

    And when I really see, my heart is warmed.

  • Savoring September: Morning Haze

    p1090163.jpg

    The breezes taste
    Of apple peel.
    The air is full
    Of smells to feel-
    Ripe fruit, old footballs,
    Burning brush,
    New books, erasers,
    Chalk, and such.
    The bee, his hive,
    Well-honeyed hum,
    And Mother cuts
    Chrysanthemums.
    Like plates washed clean
    With suds, the days
    Are polished with
    A morning haze.

    (September, by John Updike)

  • Savoring September: Bear Behind the Lens

    Saturday morning breakfasts are a tradition in our home, one of the many ways we love to start our weekend. I love making creative pancakes and scrambled egg combinations, and today was my first Saturday back in the kitchen in a month and a half. We all chipped in to get food (and coffee!) ready and on the table while sweet Bear followed us around with the camera, capturing what was important to him.

    Life.

    And living.

    Here are some of my favs:

    p1090172.jpg
    p1090176.jpg
    p1090178.jpg
    p1090187.jpg
    p1090190.jpg
    p1090195.jpg
    p1090194.jpg

    “Seek the wisdom of the ages, but look at the world through the eyes of a child.”
    (~R. Wild)

  • Savoring September: Football (or When Did He Grow Up?)

    Yes, he seems so small. Yes, his practice jersey is huge on him. Yes, the thought of possible injury makes me quake a bit on the inside. Yes, it’s one more step in holding him loosely.

    But, y’all, the sheer joy on his face when he bolts through the door after practice warms this Mama’s heart.

    He is doing what he loves, and it is beautiful.

    337062_10100217027586849_7822368_50513220_6880803_o1.jpg

    Football is like life, it requires perseverance, self-denial, hard work,
    sacrifice, dedication and respect for authority. (~Vince Lombardi)

    341298_10100217027442139_7822368_50513217_4410184_o.jpg
    290298_10100217027706609_7822368_50513222_167884_o.jpg
    328336_10100217027751519_7822368_50513223_8264622_o.jpg


    I am delighted to have you play football.
    I believe in rough, manly sports.
    But I do not believe in them
    if they degenerate into the sole end of any one’s existence.
    I don’t want you to sacrifice standing well in your studies to any over-athleticism;
    and I need not tell you that character counts for a great deal more
    than either intellect or body in winning success in life.

    (~Theodore Roosevelt’s Letters to His Children)