• A Rather Tedious Update but with Pictures of Hands

    My weekend has consisted of 15 hour sleeps. Yes. 15 hours. And I still wake up exhausted.

    The good thing is I am starting to feel like I’m coming out of the extreme fatigue and moving into just plain ol’ fatigue. I am up and around more and getting more things done around the house, but I rest after every accomplishment. My parents are still here so Mom can help me out… they will leave on Wednesday.

    The bad thing is that I fall asleep about 15 minutes into the Olympics every night. And y’all, I cannot tell you how much I love the Olympics and how sad I am that I am missing everything! And poor Brian. He’s missing out on all my sobfests whenever we win the gold, which apparently is a lot. Go USA!

    It will take roughly 6-8 weeks before I feel normal again, which is rather laughable considering we have no idea what “normal” is anymore. In the meantime, we know to expect a gradual increase in energy, emotional stability and body temperature.

    As for my future. Well… there’s a lot ahead. Over the month of March I have 6 appointments and follow-ups. On March 2nd I have a diagnostic scan for followup on the breast cancer to check for recurrence, so I feel like I am on an emotional roller coaster. Can I just tell y’all how Satan has been attacking and plaguing me with fear?! I have little strength to fight the voices in my head that say, “Two weeks. Two weeks is all the celebration you have and then the other shoe will drop and they’ll say they see something, because, after all, that IS the story of your life.”

    And the nightmares set in. The suffocating compressions on my chest in the black of night. The memories of all the pain and brutality of chemo and radiation and I think, “I can’t. I can’t do it all again. Please, God, don’t let it happen again. Please?” And I wake up clawing at the air, tears streaming down my face, and I reach out to feel for Brian.

    It never wakes him. I don’t want to wake him. I just need something tangible to touch. To remind me that God is near. Then through the soft light streaming in windows I look at the face of my husband, and I weep for him. For the lines I see in his face that weren’t there 3 years ago, and I beg God to spare him any more of this. He is so tired, y’all, so very tired. He has been so faithful, y’all, so very faithful.

    Beyond all this there are other follow-ups, all “just to be sure”. I have another iron infusion scheduled in April because my blood levels are so anemic. My body is just plum tuckered.

    And then there are my hands. Do you want to see?

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    That is my left hand. And yes, my very beautiful wedding ring. See that sapphire wrap? Bri bought that for me on the 5 year anniversary of our engagement. His love language is NOT gifts. That makes this wrap even more meaningful. And as beautiful as it is, it’s not because of it’s beauty that I love it… it’s because of the beauty of my Bri’s love and even deeper of our Savior’s love for us. But I digress…

    My right hand is swollen. Very swollen. It’s called lymphedema. It’s a result of the number of lymph nodes that were removed in my surgeries. And it’s painful. Very painful. There is fluid all around my joints. And it requires physical therapy. I haven’t gotten to physical therapy yet, because I can’t figure out how to manage that with all the other appointments. So I’m wearing this…
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    And singing Michael Jackson songs all day long whenever I do. Okay. Not really. Never was much of an MJ fan. My husband is shuddering right now… how could I NOT love the King of Pop?! Anyway, it’s called a compression glove and it helps keep the swelling compressed. But it also makes writing (which is a huge part of my life) and typing very difficult.

    And the children. They are clingy and weepy. Sunday we went to Sunday School and Asher cried when we left him. Then we were planning to attend part of the service, but not all because of my fatigue. My parents would bring the children home, and Bri would take me home after the music. But when the time came for us to leave, Bear climbed on my lap and sobbed in his quiet Bear sort of way. “I don’t want you to ever leave me.” he whispered. So I sat through the whole service and snuggled him on my lap, because I couldn’t do it to him. We are all a mess, basically. Just a mess.

    Sooooo… can you guess how I feel? I feel like everyone expects us to be crazy jumping over the moon excited that the cancer is gone.

    We know for now that the cancer is gone. We are thankful. We are praising God.

    But it’s all in a reserved, quiet celebration kind of way.

    Because it’s not over. There are more tests and lots more recovery ahead, and it is exhausting to think through it all.

    But we are together.

    We are clinging to truth.

    We are clinging to Him.

    And we are cancer free.

    Even if it’s just for two weeks.

    We’re still cancer free.

    But we still need your prayers.

    And we still need His strength.

  • Monday, Monday…

    … what a day!

    (Next week, I’ll give you the run-down on what the next 3 months–yes, you read that right 3 months–look like with scans and follow-up. My body is actually shutting down even more the past couple days, so I am sleeping a lot and finding little to no strength. That should gradually start to improve. In the meantime, here’s a glimpse of our Monday. Believe me, I’ll never complain about Mondays again.)

    We arrived at the hospital on time for my scan only to find they had pushed it back an hour because they were running late, so I went to the cafeteria with Bri and watched him eat. Can we just say all together, “Torture.” I had been allowed a light breakfast, but nothing more until after the scan. He was very gracious and got a salad with his meatball sub rather than fries. At least, he thought that was being gracious. I just wonder how eating a meatball sub in front of a starving Italian is gracious? (In all fairness, I told him to get the meatball sub. I am just that loving of a wife.)

    Bri wasn’t able to go back into the scan area with me, so I spent the next hour lying on a freezing cold table unable to move. And y’all, I mean unable to move. They actually strap your legs and arms to the table, your feet together and your hands to your sides so you can’t move. And the machine lowers to about 1/2 inch from your face. With all my maladies, I am so thankful I don’t have claustrophobia!

    After the scan, they told me that because of my dangerously low thyroid levels (their words, not mine–can we just all say together, “Freak out!”), the doctor would want to see me, so just sit tight. That was the point at which I became hopeful that we might get results on the same day. Within 5 minutes the doctor was in the room to share the news that not only was the scan clear, there was not one speck of radioactive material in my body. Usually they see a few little tiny areas floating around. Not one speck.

    She smiled at me and said, “So, run out to the waiting room, grab your husband and go eat whatever you want to eat and celebrate!” She gave me a few more instructions because I will suffer from nausea for the next couple weeks because of the radioactive iodine they gave me, and she gave me strict orders on getting my thyroid levels back up. Then she waved me on my way, “Now, go find your husband.”

    I weaved my way through the labyrinth of hallways to the exit, and as I turned the corner, the door to the waiting room was open. I could see him sitting there, head bowed, and I thought two things. First, I thought, “Dang, I love how he looks in that coat!” Then I thought, “This is a movie moment. I can truly run through these halls and scream our wonderful news, meeting him there to celebrate.”

    I wish I could tell you I did.

    But I didn’t.

    Instead, I snuck up next to him and stood. He saw my feet and looked up, hope in his eyes.

    I grinned.

    “Can we go get a Sonic burger?” I whispered.

    And he knew what that meant.

    And he sprung to his feet.

    And we stood in the waiting room and hugged while I cried.

    Then I think, but I’m not certain, that I floated the whole way to the Jeep.

    Phone calls to family and dear friends. Tears on a snowy Jeep ride home. Sonic burger that never tasted so good.

    Then I came home to my little loves, and Ash bounced up and down, “Was it clear? Was it clear? Was it clear?”

    We sat on the floor all five of us and pulled each other close. “Your mommy,” I whispered, “had a clear scan today.” Asher went crazy. Screaming and hugging me. The other two didn’t quite know what that meant. So I finished. “Mommy doesn’t have any more cancer.” And Micah got it and screamed and hugged me, then he sat up, scrunched up his nose and said, “But do you have to still eat your special food?” “Nope.” I told him.

    Then Bella piped up, “And can I be near you and with you and hug you whenever I want?”

    I grabbed that mass of curly-red delight and held her tight, “All day long if you want.”

    “Oh!” she clapped and hugged, “I do want, Mommy, I do want!”

    Me, too.

    Yes.

    Me, too.

    And that is pretty much all I’ve done to celebrate.

    And it’s been a wonderful celebration!

  • Wednesday Worship: Your Hands

    I have made no bones about how I love, love, LOVE Jj Heller. I have listened to her music almost daily through the past years. Recently she debuted a new album, Painted Red, and her I’ve been listening to her song, Your Hands, like crazy over the past weeks (not even realizing what an hit it had become on Christian radio, because I don’t listen to much radio.)

    I have often written about how His hands are the best place I could be… about the confidence I can have in Him because I know Who He is and where I am. Yes, that confidence has been shaken as the hurricane of my life has swirled around me, but just because I am shaken doesn’t mean truth changes. And while I am crazy over the moon excited that we are cancer free, if the answer had been “No,” nothing would have changed with Him. And when I look to the next 3 months and all that still has to happen medically for me, and when I look at the long road of emotional and spiritual recovery I have ahead of me, I start to quake again and wonder how I’m going to do this anymore.

    Then I remember two things:

    Who He is.

    and

    Where I am.

    http://ws.amazon.com/widgets/q?ServiceVersion=20070822&MarketPlace=US&ID=V20070822%2FUS%2Fsprofjoy-20%2F8014%2F693048e0-4e87-4b70-b7fa-40b155df6cfd&Operation=GetDisplayTemplate Amazon.com Widgets

    Song: Your Hands
    Artist: J. J. Heller
    Album: Painted Red

    I have unanswered prayers
    I have trouble I wish wasn’t there
    And I have asked a thousand ways
    That you would take my pain away
    You would take my pain away

    I am trying to understand
    How to walk this weary land
    Make straight the paths that crooked lie
    Oh Lord, before these feet of mine
    Oh Lord, before these feet of mine

    When my world is shaking, heaven stands
    When my heart is breaking
    I never leave your hands

    When you walked upon the earth
    You healed the broken, lost and hurt
    I know you hate to see me cry
    One day you will set all things right
    Yeah, one day you will set all things right

    When my world is shaking, heaven stands
    When my heart is breaking
    I never leave your hands

    Your hands that shaped the world
    Are holding me
    They hold me still

  • Because I’m Too Tired to Think…

    … I give you a post from a year and a half ago right after I had finished radiation. I just needed to laugh today.

    So, this whole “going back to being a mom full-time” after months of other people caring for my children while I recovered? Not so sure I’m ready. I totally want to be ready. In my mind I am ready. My body gives out on me about halfway through the day, but if I can get a nap (that’s a big if!), then I can continue. I think the question is, “Am I mentally ready?” Perhaps it’s because my children are crazy! Crazy fun. But also just plain crazy.

    Tuesday was a long day. The two days of rain had taken its toll and my boys were awash in cabin fever. I had a physical therapy appt. which took me away from home for 2 hours in the afternoon. Upon my return I discovered that my boys were hyped beyond imagination and were taking advantage of their poor sitter to do everything they knew they weren’t allowed to do. (Tammy, if you’re reading this, you don’t ever have to come back to this madhouse if you don’t want to.)

    Once she left, the insanity continued, so after supper I thought it would be a wonderful idea to put all the children in the bathtub and let them play for a bit. They would be contained, I could help my parents clean up the kitchen, and we could all catch a break. Warning: insane children plus a bathtub full of water is NOT a wonderful idea.

    The fighting ensued culminating in Micah’s screech, “AsHER! Stop PEEing on me!” Oh my stars! Did I just hear that? What do I do with that? Sigh. So much for the peacefulness of bathtime. With the help of my mother (who is a saint, by the way), I emptied the tub, refilled it, got Ash out immediately, then continued with my evening… putting the kids down for bed. Grandma took charge of our baby girl, and I got the boys all snuggled in their beds. Ginormous hugs and kisses, then upstairs with Tiff to settle in to Idol. Yes, I am an Idol fan.

    Do you remember those nights as a kid when you went to bed, but you were way too hyped to sleep? You would lie in bed and your imagination would go wild playing long into the night? And your parents would keep coming to check on you and you’d hear them coming and pretend you were asleep? But they were smart and magical and all those things parents are and I could never pull anything over on them. At least not until I was older. I was the sneaky kid. My brother, he was the problem child… just kidding, Mike. I love you.

    The sneakiness of my past has caught up to me with my children. I went down a few times to calm them down and lay down the law. A law which they promptly ignored. I traipsed downstairs umpteen times, doling out their discipline, and missing Idol performances. Because we all know that Idol is much more important than training up a child in the way he should go!

    Half an hour after putting the kids down for the night… Okay, has the phrase, “putting your kids down” for the night ever bothered anyone like it bothers me? I feel like I’m on a farm and our favorite horse just broke his leg. “Gotta put Ranger down” and, heavy-hearted, we pull out the ol’ shotgun. Not something I’m inclined to do with my children. I digress yet again…

    I got the children in bed. At the end of Idol, I went downstairs to check on the kids, because although they were quiet, I could hear rustling and knew something just wasn’t quite right. I peeked in their room and found empty beds.

    They’re not in their beds!” I cried. I searched the bathroom and living room and finally went back to their room and turned on their light. In the corner, behind the hamper, I spotted a little brown-haired head.

    “WHAT are you doing?!” I asked, half-screeching, half-laughing as Bear emerged from underneath the wagon full of stuffed animals. Blond hair askew, lips trembling, green eyes troubled, he whined, “We were hiding because we were scary (that’s scared in Micah-ese). Asher said there was a monster in the closet and we were hiding from it.” I sputtered, not quite sure what to say. Then he nailed me with, “So I was under the wagon praying to GOD that I would feel better and not be scary.” (Can I just interject that I must be listening to too many Piper sermons online, because Bear said “God’ just like John Piper!)

    Trying hard not to laugh, I opened the closet, showed them that there truly were no monsters in the closet, tucked them in bed and told Micah that it was good that He turned to God when he was scared, because the Bible tells us that when we are afraid we can trust in Him. Micah heaved a deep sigh, curled up with his green blanket, and fell to sleep promptly. Asher climbed in bed looking guilty because he knew he had just implanted fear in the heart of his brother. “I’m sorry, Mama,” big brown eyes pooling with tears. “It’s okay, buddy. Plant another ginormous kiss on me!” More hugs and kisses and he was soon asleep.

    Then I went back out to the living room, told the story to my parents and laughed so hard tears were streaming down my cheeks. Ahhh, the joys of reclaiming my home. Is it even possible?

    I fear there will be more stories like this in my near future as we try to figure out this whole life post-cancer… although life post-cancer still has a lot of scans and appointments and fatigue and recovery in it…

  • I Wish You Could Have Seen Their Faces…

    …when we told our children their mommy is CANCER FREE!

    And I wish I could see your faces as I tell y’all thank you for your prayers and encouragement. You have no idea how this bloggy world has held me up through so much.

    Soli Deo Gloria
    To God Alone Be Glory

    (Will post more soon to update you on where we go from here, because while the cancer is gone, there is a very long road of recovery ahead… but we won’t think about that today. Today we’re going to CELEBRATE.)

  • One O’clock Today…

    Neither go back in fear and misgiving to the past, nor in anxiety and forecasting to the future, but lie quiet under His hand, having no will but His.

    (H. E. Manning)

  • Lifestyles of the Sequestered and Never To Be Famous

    Soooo… I’m bored.

    I’m stuck in my room with an absolutely gorgeous snowy view of the train station across the street. I hear little voices chirping through the house and the hum of the washing machine.

    And I thought, “Well, I could always blog”

    So, come join me in my random thoughts as I write about the lifestyles of the sequestered and never to be famous.

    –My face is swollen. The radioactive iodine can collect in your salivary glands, and apparently it has in mine. It gives me a headache, but that’s really the only negative side effect. My very diplomatic father couched the swelling this way, “Well, cutie pie, let me put it this way. If you had any wrinkles before, there aren’t any now.”

    –The face swelling dashes any of my hopes to figure out who my doppleganger is or was or whatever was going on in Facebook-land last week. My mom suggested Miss Piggy. Instead, I just figure I’ll pick an actress I wish I looked like. Can I be Catherine Zeta-Jones? Seriously, though, I’m just happy to look like me… swollen face and all. After all, God designed me… who am I to complain?

    –My parents are hysterical and I am delighted that they are here for a week. Every little bit my dad pops into my doorway wearing one of the kids’ costume hats or tells me a funny story or just stands and talks to me. My mom calls herself Cinderella, slaving away for me while I lie in bed eating bon-bons. Only my bon-bons are this no salt, no dairy, no egg, no Italian food diet I have to be on. I did make some brownies last week that really are quite tasty though.

    –I have a new appreciation for those of you who have to be on special diets. And while I choose to avoid certain foods in my “normal” diet to help lower my recurrence risks, I can still splurge every now and then. You can’t. And you have my great admiration, because I. heart. food.

    –Monday night, I’m ordering a pizza!

    –I watched Nat graduate. It was awesome.

    –Every 30 minutes or so, my Bella appears in some new dress or shirt or something and asks, “Can I come give you a quick hug yet?” Sometimes I say “yes.” It kills me when I have to tell her to wait a little longer.

    –I absolutely love that my dad has been in the play room with Bear and Bella for the past hour and a half, and I hear Bear say, “Oh, Grandaddy, isn’t this fun that you are the dragon and I am the knight?!” He is so good at getting down on their level and loving them.

    –My parents, if no one else in the house, will sleep well tonight.

    –I do get pray a lot. That is one of the beauties of this sequestering. Time. And I am praying for so many friends… friends who’ve recently lost a baby, friends who are struggling to get pregnant, friends who just had surgery, friends who are facing heart surgery on their baby when she is born in a few weeks, a friend who’s sister just died and she can’t go to the funeral, friends fighting this cancer battle, friends without jobs, friends who know what suffering is far more than I ever have… and so much more. Can I give a gentle nudge? If you know someone who is hurting? Turn off the Olympics or stop what you’re doing for just a moment and take the time to call them or write them an email or note… just let them know they are important to you. I know it would mean a lot to them.

    –I received more possibly good news today during a phone call with a Jessie. And I am still holding my breath. Well, okay, I’m not really still holding it… but I am so excited and hopeful and crying and just praying and praying and praying for this miracle that Andrew’s cancer battle might possibly be ending.

    –The previous owner of our house saw Brian out front this morning and stopped to talk with him. He saw the room Bri remodeled and loved it. He also answered a mysterious plumbing problem that has plagued us and it was good news. We are relieved and grateful.

    –My husband posted this on my FB wall: Hey babe. You are positively radiant today! I’m not sure whether to strangle him or thank him.

    –We are not celebrating Valentine’s Day. But we’re so in love that it’s Valentine’s Day every day in our house. Are you gagging yet?

    –Bri and Ash have been gone all day. I miss them even though I wouldn’t be able to be with them if they were home. Is that strange?

    –Bear is now downstairs teaching Grandad how to play Star Wars Wii. I can hear through the vent to the room below. Bear says, “Grandad, will you please drop out so I can do this part?” Grandad replies, “Sure. How do I drop out?” I love it.

    –Speaking of Valentine’s Day, my daddy brought me flowers and peanut butter cups today. I am convinced that there will be peanut butter cups at the wedding feast in Heaven.

    There you have it. I am now no longer bored. You are. However, I have a cure for your boredom, go to my Rolling With the Punches post and read Heather’s comment. I read it out loud to my mom who was in my room folding clothes with me and I literally screamed with laughter.

    Thank you, bloggy friends, for praying for us. We are truly grateful.

  • May I Introduce You to…

    … the Good Doctor.

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    I’ve written often on my blog about my dear friend, Natalie. She’s written on my blog several times as a Guest Blogger. She’s dropped in on me with her surprise visits. She’s walked into my world and played with my children, running through sprinklers unexpectedly and having to borrow my clothes while hers dried off. She’s played countless hours of online Scrabble with me when I was unable to do much more than curl up. She’s shared her struggles and sadness with me overcoming fear that authenticity would scare me away. She’s been mistaken for my sister, and I often wish she really were (we share our italian heritage, but better yet, we also share our Jesus heritage… I suppose I can live with that). She’s is kind and compassionate, brave and not afraid to try new things. She’s not afraid to laugh at herself, and knows the value of true friendship. She’s sent me emailed videos of her just talking to me so I would laugh. She’s sent me cards in the mail. She’s brought our whole family up to her family’s Jersey Shore beach house for a weekend away. She’s loved me in my messiness. She has loved me so very well.

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    And y’all… she did all that while she was in PT school. And today around 10:30 if you could be a fly on the wall in our house, you will find me sequestered in my room weeping crocodile sized tears of joy and pride while I watch her graduate on line.

    And from now on y’all will all be able to call her Dr. Nat; however, she informed me on facebook this morning that she’d still just rather be called Nat.

    Did I mention she’s humble?

    I couldn’t be more proud of her.

    Would y’all take a moment to congratulate her? She deserves it!
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  • Rolling with the Punches

    We have had a mouse in our house.

    UGH.

    We kind of knew we would. I mean, we move to an old farmhouse with an acre and a half of land behind us, so we were expecting little visitors, especially with all this snow.

    This morning Brian checked the trap he had set up last night, and cheered, “Got him!” (Side note #1: For all you “save the mouse” people, yes, we killed him, so please just accept this and don’t be a hater.)

    For days all I’ve been saying is, “Get that disgusting vermin out of my house. He is wreaking havoc on my perfectly organized shelves and leaving his tiny, disgusting droppings behind as if to laugh at our ineptitude in catching him.”

    So I was completely unprepared for my reaction.

    I crumpled. I sat down on the couch and wept.

    Bri stared at me, wide-eyed, not quite sure what to do or say.

    “The thing is,” I sobbed, “I know how he feels. You’re tooling along with your life, doing what you do, and all of a sudden… BAM!!!! (I believe Brian actually jumped at that point.) Life comes along and snaps your neck.”

    That was at 6:30 this morning.

    At 7:45, I was ushering my boys out the door and preparing to go wave good-bye at the window, when the phone rang. I saw it was from the hospital and I picked it up, missing my morning routine of blowing kisses and signing “I love you.”

    “Angela…” she slowly drawled, “Your thyroid levels are extremely low and the doctor wants to get your scan done right away instead of waiting so you can get back on your meds as soon as possible. Can you be here for dosing at 10:00?” My mind raced with all the details that had to happen between now and then, but I told her we’d figure it out.

    One of the moms from Redeemer, our boys’ school, was already coming to clean my house this morning, and she was planning to take Bella with her for the afternoon to play, so I knew childcare was covered for her. I found a ride to the hospital (another Redeemer mom–Side note #2: Our boys’ school is awesome in so many ways!), made a few phone calls, and I was on my way.

    But not before I had a complete sobbing meltdown on the phone with Jessie, “My boys.” I said, “I didn’t get to tell them good-bye.”

    Little did I know when I was sobbing over that mouse’s snapped neck how I would feel that internal snap of a mother’s heart 2 hours later.

    See, I went to the hospital at 10:00 and swallowed a dose of radioactive material that is dangerous to the growing cells of my little ones. I am now sequestered in my room until Monday unable to be with them except for a quick hug once or twice a day. (Side note #3: I am not allowed around children, but I am allowed a prudent distance from adults.)

    I will return to the hospital on Monday (Side Note #4: This is a correction from Bri’s previous post. I go Monday, not Tuesday) for the scan and we will hopefully have same day results. My parents will be here with us off and on over the weekend and throughout part of next week to help Brian and to care for me. There are some mild side effects to the dosing that are uncomfortable, but other than the continued extreme fatigue and emotional exhaustion, I will be okay.

    I am able to be around adults 3-6 feet away, so after the kids are in bed, I can go downstairs and hang out with Brian and watch the Olympics, but mind you, I will sob over every American win, every tug at your heart success story, every Star Spangled Banner played, every emotional Visa commercial, and poor Brian will be absolutely insane by the end of the weekend. But at least we’ll be together (Side Note #5: He has to sleep on the couch. He might not mind too much after watching the Olympics with me.)

    We’ll keep you posted… and in the meantime, thank you for praying for us.

    That blesses us. It truly does.

  • Movin’ on up

    Quick guest post- Angie got a call this morning from the hospital, after yesterday’s blood work they decided not to wait until next week to do her scan. She’s on her way in now to start the process; today they will give her a dose of radioactive iodine and the scan I assume will be moved up to Tuesday. Good news, because it’ll be over with sooner. Bad news, because it means she will have to spend the weekend in isolation from the kids and I. I think she was most upset that she didn’t get to say a proper goodbye to the boys before they left this morning.

    Thought you’d want to know; we so appreciate all of you out there in the interwebs, and covet your prayers. Thank you.