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A Small Word That’s Really Huge
Today was exhausting. Each day is, really. I wake and wonder how on earth I will do all that I want or need to do, and by the end of the day I’ve only done a bit of it, and I wonder how I’ll get up the next day and keep pushing forward.
It’s an awkward place I’m in.. this waiting place before surgery, because part of me wants it here tomorrow and part of me wants it to never come. We are packing our week full of summer fun, trying to catch all the time together we can before our lives change yet again in the whirlwind that cancer is.
We went to dinner tonight. Ate outside. It was on our summer list. While there we saw my surgeon. (I love living in a small town!) He’s awesome. He really is. We are so thankful for that. He came right over, met the kids, then commended me for following his instructions and eating all my favorite foods this week. He re-introduced us to his wife and we chatted for a bit, then he put his arm around me and said, “Enjoy your week,” and I saw the sadness, the understanding in his eyes. He is such an answer to prayer for us… a gentle man who cares for us beyond our physical needs, he cares for our souls. We are grateful.
Many of you ask how I am. How we are.
How do I even answer that?
We are ok. But we’re not. We are grieving. But we are hopeful.
We are hurting and heavy and stricken and anguished and tired and exhausted and numb and screaming and aching and crashing and burning but fighting and pushing and growing and clinging and loving and wishing and hoping and laughing and crying.
The kids are struggling. They are afraid. They are sad.
Sad.
It seems like such a little word. But it really is huge.
And that’s what we are.
We are sad.
I look at our summer list, and I ache and grieve. There is so much undone.
I look at our garden and all the vegetables beginning to pop out, and I sigh, knowing I won’t be able to do much with any of them, and I won’t be able to eat them either.
I look at our vacation plans and weep, because we cannot go.
I look at our house and our list of projects that are unfinished or in the beginning stages, and I just shake my head. They will remain unfinished for a while, new ones won’t begin, and savings will pay bills not buy furniture.
And I just feel so sad.
I know all the right answers. I know that, Lord willing, we’ll have a summer list next year, projects can begin later, others can chop veggies and freeze them for us and I’ll get to eat them eventually. I know that people are much more important that projects and plans. I know the Lord has bigger plans for us.
I know all that.
But I also know this hurts.
We are grieving our losses, and we are grabbing each other, holding tight in the darkness and desperately treading water, sucking frantically for air and swallowing a lot of muck and mire and briny fluid.
And clinging.
Clinging oh so tightly to truth and begging God for strength to believe it to be true even though we know it is. We are just afraid we might forget the truth in all this.
We are okay.
We are His.
And that means we will be okay.
But life just doesn’t feel okay right now.
And I’m okay with that, with being here, with being human and with being real before our Lord and each other.
He has not forsaken us yet.
We know that.
We cling to that.
We have to.
There is nothing else to cling to.
(Many of you have asked how you can help. Our friend, Maretta, is going to coordinate help for all our needs. Many of you know her and know how to get in touch with her. If you don’t, just contact me and I’ll forward messages on to her. She is a gift to us. As are all of you. Thank you for your prayers and love.)
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What Has Been Given
What has been given is not what we want, and it has been a bitter road to accept. Since the moment we heard it was cancer again, the cry of my heart has been to just see Jesus in this, to just know that He is here and with me, because I haven’t felt Him near.
What has been given is not what we want, but I also know that far and above what has been given us for this part of our journey, we have been given the gift of grace for every day to accept what comes before us.
And what comes before us?
Surgery looms, but we are grateful that the cancer did not spread into other organs.
Surgery looms, and it will be 3-5 days in the hospital, then recovery, and then…
Chemo again.
Yes. Because of my young age and the nature of the cancer, they will want to treat it aggressively.
I don’t know many details beyond that. I will see my oncologist on Monday to discuss the specifics of treatment.
Surgery is July 18. They are moving quickly.
I am thankful for that. I am thankful for the hope of a full recovery from this horrible disease.
Our road ahead is long and hard.
Our children are fearful and grieving.
We are exhausted and hurting.
But we are bowing in acceptance. This is the road. We will walk it.
We accept and we know He is with us.
Will you pray for eyes to see Him?
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If He’s Good, I’m Good
She sat beside me this morning on the swing and we raised our arms high, signing “I love you” to Brian as he drove off to work in his Chevy truck (please pronounce that with a hard “ch” not the soft “sh”. That’s what Brian does to make me laugh, and if y’all feel anything like me these days, you need a laugh). “Double love!” Bella shouted as he drove away, “No, love FOUR times!” Then she curled into me and whispered, “Daddy. I just want Daddy here, too.” We are all feeling it, this need to be together. To grab every moment.
We swung in silence for a while, and I surreptitiously wiped away tears, because my tears make her even more fearful.
I have watched Bri these past few days, and he looks 10 years older to me. But driving away in that big ol’ truck, he also looked so small, so broken. So I cried. Who will wave to him on the porch? If this isn’t curable? Will he have to drive away in the mornings, take the children to school and gaze at an empty house?
I cannot go there. I must not. Dear Lord, please no!? Have mercy on us. Body, soul, mind and spirit. Have mercy? It is all I can pray, all I can beg. For him. For our children. For me.
Last night some of our deacons and their wives came over and sat with us in our pain, listened to us share, and prayed for us. When they asked Bri how they could pray, he sighed.
“Just pray for her. If she’s good. I’m good.” And I sigh with him.
Oh, y’all, how could I ever doubt this man’s deep love for me?
Later that night he woke me after I had fallen asleep on the couch so I could come to bed. I murmured something about just sleeping on the couch. He stood there, over me… “You sure? Why don’t you come to bed?” And I knew. He needed me up there with him. Needed to hold me… to just be together.
My heart is breaking for him, y’all.
Just breaking.
Because y’all, as painful and fearful and terrible as this is for me, it is for him, too.
And just as it is for him. It’s the same for me: If he’s good, I’m good.
So I’m begging you… please don’t forget Bri in all this.
He suffers silently. But he suffers. So much.
(Many of you have asked how we are, what you can do, what we need. I will write a post soon to address this. But just to tell you: We are grateful for your love and your concern and your prayers. As for how we are. We don’t know. We are hurting and grieving and struggling, but we are clinging. That is all we can do right now.)
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Bedtime Prayer: Just As I Am
I wondered how to come to You,
I did not dare believe it true,
That You regard the orphaned ones:
Beloved daughters, worthy sons.The broken and the barren, too,
I heard could find some rest in You.
What kind of love in injury’s place,
Would leave instead the stain of grace?So I come in sorrow and I come in shame.
I come to the cross with my pain.Just as I am, without one plea,
But that thy blood was shed for me,
And that Thou bidst me come to Thee,
O Lamb of God, I come, I come.The pardon that I found from sin
Spilled out from where the nails went in.
My heart will ever more proclaim
I had not lived until that day.And I know there is a crown for me
Beyond where mortal eyes can see
And I don’t nod to any man,
But offer me just as I am.So I come rejoicing with hands held high,
And I come singing words of new life.Just as I am, without one plea,
But that thy blood was shed for me
And that Thou bidst me come to Thee,
O Lamb of God,
O Lamb of God,
O Lamb of God, I come, I come.O Lamb of God, I come.
(~Nichole Nordeman, Just As I Am)
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Praying Over Zinnias
This morning, I stood at my kitchen sink and stared unfocused out the window at the dewy yard. I couldn’t see the ragged canes of our black raspberry patch straggling through the yard, because yesterday morning some of our former youth and college kids came with their father and cleaned it all up for us. I thought for a moment about what an incredible blessing it was, how humbled we are to be loved so much.
Then my eyes fell on the zinnias on the windowsill. Seeds Ash planted for Mother’s Day and gave to me, sitting there waiting for me to move them outside. I have the perfect spot for them, just at the edge of the shed where I can see them every day.
I’ve been waiting until I could get that spot dug up and cleaned out because it has become so overgrown and encumbered with weeds that I want to start over, and I want Asher’s flowers to be the first planted.
Asher’s zinnias are wilted and dying.
Over the course of the last few days I’ve forgotten to water them, and I am afraid they are beyond hope.
And I sit and weep over flowers and pray over flowers and beg God to let them revive, for Asher’s sake. For mine.
Y’all, I feel like those flowers.
I sit and weep over my diagnosis, my fears, my struggles, and I wonder if I am too wilted and beyond hope.
I cannot go there. I must fight constantly against the whispers in the back of my brain. “Get them planted now, because next summer you might be gone.” And I mentally scream at the thoughts inside my head to SHUT UP, and I beg God for mercy on us and our home and our hearts.
I sit and weep over us and beg God to let us revive, for our children’s sake, for my husband’s sake, for my parents’ sakes, for my brother’s & grandparent’s and in-law’s sakes, for my friends’ sakes, for my sake.
Not just my body, but our hearts. Revive us, O Lord, with deeper love for you.
So I pray.
I pray for healing and grace and mercy and strength.
And I pray over zinnias, because no prayer is trivial. Because it matters to me, so it matters to God.
Thank you all, for your encouragement, support and prayers… we need them. Oh, how we need them!
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Bedtime Prayer: Jesus King of Angels
Jesus, King of angels, heaven’s light,
Shine Your face upon this house tonight.
Let no evil come into my dreams;
Light of heaven, keep me in Your peace.Remind me how You made dark spirits flee,
And spoke Your power to the raging sea.
And spoke Your mercy to a sinful man;
Remind me, Jesus, this is what I am.CHORUS:
The universe is vast beyond the stars,
But You are mindful when the sparrow falls,
And mindful of the anxious thoughts That find me,
surround me, and bind me . . . .With all my heart I love You, Sovereign Lord.
Tomorrow, let me love You even more.
And rise to speak the goodness of Your name
Until I close my eyes and sleep again.CHORUS
Jesus, King of angels, heaven’s light,
Hold my hand and keep me through this night.(~Fernando Ortega)
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“Thus Far the Lord Has Helped Us”
Then Samuel took a stone and set it up between Mizpah and Shen. He named it Ebenezer, saying, “Thus far the LORD has helped us.” (I Samuel 7:12)
We received news today. Results of my blood work and pathology on the tissue biopsied.
My liver enzymes and tumor markers in my blood were normal.
My pathology showed that this is colon cancer NOT metastasized breast cancer.
My doctor’s words: “These signs together are encouraging and you have reason to be hopeful that the cancer is contained.”
“Here I raise my Ebenezer.”
God is our hope. Our only hope.
And He has given us glimpses of hope that this may not be the worst it could be.
“Here I raise my Ebenezer.”
Three cancers.
Yes, y’all. This would be the THIRD different type of cancer in my body. (What is UP with that?!)
And He has brought me through it.
“Here I raise my Ebenezer.”
We are still grieving.
We are still hurting.
We are still fearful.
We are still dreading.
We are still crying out in desperation.
We are still begging God for miracles.
But we are hopeful.
And we are raising our Ebenezer. Our Stone of Help. Our proclamation of faithfulness. Our clinging to everlasting covenant.
Here I raise my Ebenezer;
hither by Thy help I’ve come.
And I hope by Thy good pleasure
Safely to arrive at home.
Jesus sought me when a stranger
Wandering from the fold of God.
He, to rescue me from danger,
Interposed His precious blood.
(~Robert Robinson) -
How Shall I Pray?
How shall I pray?
Are tears prayers, Lord?
Are screams prayers,
or groans
or sighs
or curses?
Can trembling hands be lifted to you,
or clenched fists
or the cold sweat that trickles down my back
or the cramps that knot my stomach?
Will you accept my prayers, Lord,
my real prayers,
rooted in the muck and mud and rock of my life,
and not just the pretty, cut-flower, gracefully arranged
bouquet of words?
Will you accept me, Lord,
as I really am,
messed up mixture of glory and grime?(~Ted Loder, from Guerillas of Grace)
It is a struggle to breathe. A struggle to believe.
Will you pray for the peace that only the Spirit’s presence can give?
That I am accepted. Loved. His child. Not forgotten. Nor forsaken.
Completely and utterly His.
(Thank you to my Monica, who sent this prayer to me today.)
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This is Wrong, but I Know You are Good
“Sadness does not equal unbelief. There are things that can & should break our hearts & make us sad. It’s called lament &, throughout the pages of scripture, there seems to be an awful lot of it. When I see glimpses of God’s goodness amidst the sadness, I can stare directly into the sadness & yet worship. Lament is a kind of worship that says, ‘This is wrong, but I know You are good.’” (~Nancy Franson)
Sweet friends, they found a mass in my colon, and it is cancer.
Our cries of lament continue.
We are looking for glimpses of His goodness.
We bow our heads and long to worship.
We covet your prayers.
(We know very little detail right now. I have a CT, X-ray and appt. with the surgeon next Friday. We’ll keep you posted as we know more.)
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“For Our Children”
These summer night have found us unable to sleep. The moon’s rising at late hours keeps the children awake as long as there is light. But it is more than that. Fear for each of them. Different fears, but they all have them and they whisper them to me at bedtime as I pray with them.
“Will you pray that lightning doesn’t strike our house?”
“Will you pray we won’t be hit with a big wave?”
“Will you pray we won’t have a flood and our house get washed away?”
Then the one that strikes my soul.
“Will you pray I don’t ever get sick like you, Mama?”
Oh, dear child. If you only knew how often I pray that for you! For all of you. For all of the dear ones in my life.Then he sits beside me, one of my little men with troubled eyes and an even more troubled heart.
“Do you know why I have so much trouble going to sleep at night, Mom?”
Why, my child?“I’m worried about you. I’m worried I might not have a mom anymore.”
My eyes overflow as I look into his, speechless. He carries so much. They all do. So much weight to bear.“I know you’ve taught me. I know the Bible says God always takes care of us and He has a reason. But, Mama? I have a really hard time believing that.” His words… barely a whisper now, as if ashamed to voice his struggle.
“Oh, my love, I have a hard time believing it, too. Such a hard time.”
We said no more. I had nothing to give him other than arms and tears and prayers.They need them more these days than usual. My arms and my love.
They are bearing heavy burdens.
We all are. I am facing results from more tests in this next week… searching for answers of why the pain? why the fatigue? And we are fearful. And we await answers and we pray for nothing more. Please, Lord, nothing more?
But I cling, knowing that even if I have a hard time believing, it doesn’t change truth.
God is good.
There is a reason.
He is with me.
And I pray.
For Our Children
Father, hear us, we are praying,
Hear the words our hearts are saying,
We are praying for our children.Keep them from the powers of evil,
From the secret, hidden peril,
From the whirlpool that would suck them,
From the treacherous quicksand, pluck them.From the worldling’s hollow gladness,
From the sting of faithless sadness,
Holy Father, save our children.Through life’s troubled waters steer them,
Through life’s bitter battle cheer them,
Father, Father, be Thou near them.
Read the language of our longing,
Read the wordless pleadings thronging,
Holy Father, for our children.-Amy Carmichael, from “For Our Children.”